Aside

Is Migraine Trendy Enough for you?

So, the “Migraine pose” is becoming a thing, thanks to MUA Nam Vo and Elle Beauty, and the Chronic Migraine community is (rightfully) BENT.

View my whole take on it on my Instagram.

👏🏻This.👏🏻Is.👏🏻Not.👏🏻Okay.👏🏻

And the people calling us out and telling us to “calm down” or to “live a little” are only adding to the stigma we have to encounter every day.

Please, don’t use my migraine to boost your ego.

💖Hearts and Sparkles!💖
~Bunny

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Aside

June is Migraine and Headache Awareness Month

Okay, I know it’s only May 4 (May the Fourth be with you, yadda yadda…), but I wanted to post about my plans for June.

I’m going to do a Social Media Challenge for MHAM. Sure, this one on puttingourheadstogether.com is from 2016, but it’s still valid! (The following image and the featured one are from that site)

migrainedisease

As for now, I’m going to rest off my current migraine…

Until next time…

💖Hearts and Sparkles!💖
~Bunny

Not Really Okay

I hate saying, “I’m okay,” even when I am…or when I think I am.

I try to be a “glass half full” sort, despite having every reason not to be. In every situation, I try to find a glimmer of a silver lining. Sometimes, it’s hard. Sometimes, it’s really hard, but it’s there, even when I have to make it up.

I’m between neurologists, due to a change in insurance pushing my out of the network of my last one. I got my referral in February (like, the first week of), and I get a call from a Neurology center, telling me to call them back to schedule an appointment, even though the earliest one they had was April.

Okay. Fine. It’s only been since November since my Botox. It’s already totally gone from my system, and I’ll have to essentially start again and not see results for the better part of nine months. What’s another two?

I call.

“We don’t have a referral for you.”

wait, what?

“I am literally returning your call where you said you got my referral and to call and schedule an appointment for April.”

“Who called you?”

“Umm…you did, ma’am.”

“No, it wasn’t me.”

(Aside: She has a distinctive tonality to her voice, not unlike yours truly does, and a thick accent…and she left her name on my voicemail. If it wasn’t the same person, she has a voice twin out there impersonating her.)

So, essentially, she called me a liar, and made me call my PCP back to resend the referral. I do them one better.

I physically go to my PCP’s office.

“What do you mean, they don’t have it, I am the one who sent it!”

How serendipitous to get to speak to the same receptionist who sent over my referral initially? Glass: half full.

She sends it again, and I watch her do it. She hands me a copy with time stamps as evidence.

I call back. Now, they don’t have openings until June.

Oh, and they still don’t have my referral and can’t even make an appointment until it is in their possession. Their office is nearly an hour from me, so it isn’t as though I can just pop over after work.

“I literally watched her send it to you.”

“Well, we don’t have it.”

🙄 …how is that my fault?

I have every intention of asking for a referral to a new new neurologist, because my migraines are back to uncontrollable and I need treatment, like, yesterday.

…whoa…pardon that rant. I strayed a bit off topic, didn’t I?

Sorry, and I know I’ve mentioned the neurologist thing before.

Good news: it appears that the pneumonia has finally run its course.

Back on track.

I hate saying, “I’m okay,” right now. Because I could be okay that moment, but then I won’t be mere hours later.

Then, I feel like a liar. Either I lied about being okay, or I am lying about being less okay. I’m honestly not sure which one. Both, maybe?

I can’t decide if I am ever actually okay, or if I’m jinxing myself by saying so.

I am literally becoming afraid to say that I am okay.

And that is not okay.

💖Hearts and Sparkles!💖
~Bunny

So Many Endless Cycles

What sucks about chronic pain conditions are the sheer amount of cycles you as a person are exposed to.

But we can’t talk about them. At least, no one wants us to talk about them.

Migraines cause insomnia, may it be in any of the stages of an attack. The insomnia either exacerbates the attack or triggers the next.

We miss work, and we get stressed about our finances. We get stressed about the strain we put on our loved ones. Stress exacerbates the attack or triggers the next.

Stress also causes insomnia. See above.

Insomnia and stress can cause anxiety and depression, which leads to more attacks, leading to more anxiety over finances and general depression.

I don’t know about you, but I get depressed from how much stress I cause others. That people worry about me all of the time.

Sometimes, it’s all I can do to not break down and cry.

But I don’t cry. I can’t. Crying exacerbates the attack or triggers the next. The tears form, those telltale gasping breaths begin…and I hold them back. Swallow them away.

However, fighting off the tears and sobs exacerbates the attack or triggers the next.

Notice the pattern?

I don’t like to be negative, despite what so many seem to want to believe about me. I don’t like feeling like some sort of useless invalid who does nothing except sleep and cause strain on her friends and family.

Sensing an oncoming attack nearly triggers a panic attack almost every time.

Look above concerning anxiety.

I feel like a failure more often than I feel like a success. My thoughts in times like these get dark, I feel like I am falling into a hole with walls so steep and slick that I will never be able to climb back out. I can’t help but wonder if people think I like being in pain or a general burden on the bulk of society.

I didn’t ask for this.

If I had to chose who should be stuck with this life (allowing that “no one” isn’t a viable answer), I would ask to take it on myself.

Because I wouldn’t wish this life on anyone… Even at my worst, I can’t be that cruel.

I wish I had the ability to at least keep it all to myself. The fact that it affects those I care about, may it be by causing worry or stress, is almost worse than the illness itself.

I want to break the cycle so much.

💖Hearts and Sparkles!💖
~Bunny~

EXCUSE ME?!

The context: A coworker thought it would be funny to play with a toy sword and *BONK* me on the head with it on Tuesday morning (playing around, not malicious. It wasn’t hard, but hard ENOUGH to trigger my head). Come Thursday, the spot still hurts something fierce, even worse than the initial hit. I see the company doctor. Yes, I reported the incident with the proper channels.

The doctor enters the room after I had finished my consultation with the RN beforehand, so he is aware of my situation. This is what happened:

Doctor: “So, I hear you have a headache.”

What I want to say: “No,Doc.I know headaches well. Intimately, in fact. I also know their cousin, Migraine, even better. This is not a headache. That’s like going to a doctor for kidney stones and having the doctor say, ‘So, I hear you have a stomachache.’”

What I really say: “I had a migraine, Sir, until it went away yesterday afternoon. Today, my skull hurts in the place where I was hit.”

I had to explain that a “headache was to your pulled quad as my pain was to your shin after running into the coffee table,” for my pain to be understood.

That’s how it always feels when a migraineur goes to a doctor who doesn’t specialize in headache disorders or migraine disease.

 

The Moral: Dont make flippant quips to people in pain/are sick. It invalidates their situation and is extremely condescending. And it isn’t funny.

 

💖Hearts and Sparkles!💖
~Bunny~

Product Review: Psi Bands

Yay! Another product review!

One of the worst symptoms encountered with migraine is nausea. Sure the vomiting bit that often comes with it is no picnic, either, but at least you feel better after the fact, ya?

We all have our methods for treating nausea. Anti-emetics are available with a prescription, or over-the-counter treatments like Nauzene tablets (there is a version in liquid form, too!) or Emetrol liquid (I, personally, prefer the latter of the pair, and I usually get it in generic) can be purchased anywhere that has a pharmacy section. These are basically sugar, stemming from days-old reliefs like allowing a spoonful of sugar (or a sugar cube) to dissolve on the tongue to relieve symptoms. Coca-cola was actually invented by a pharmacist as a medicine! But, since medications were taxed, it was eventually sold as a beverage only. (Here is an interesting history of Coke!) One to two tablespoons of Cola Syrup every fifteen minutes could alleviate nausea! If you don’t want to deal with the syrups, sipping at a warm (even flat) Coke can make you feel better. Ginger ale was my go-to ever since I was a kid. I remember suffering an attack at my grandmother’s house when my sister and I were too young to stay home alone while my dad was at work, and she would bring me a glass of ginger ale with a bendy straw to sip at. It always made me feel better. Nowadays, I don’t drink much soda outside of varieties of sparkling waters, but I will still find comfort in a ginger ale.

While I am on the subject of anti-emetics, I will list a few more consumables. Ginger tea or peppermint tea are great, too! My acupuncturist is very big on keeping the core warm when treating migraines. My sister favors peppermint candy (just make sure it has pure peppermint in it! No artificial flavorings!). Bare ginger is another great option! That one has a strong flavor, so it is not for everyone! It was too strong for me, but I cannot deny that I felt results. It also comes crystallized, which would be a little sweeter. Products aimed at expecting mothers are great, too! Preggie Pop, anyone? All-natural lemonade is yet another option.

But, what about people who can’t (or don’t) consume sugar? Or when traveling? Sometimes, the Emetrol runs out at the worst possible moment, or you don’t have access to hot water for tea. It happens. Sometimes, edible remedies just aren’t plausible.

That’s where acupressure comes in! The P6 point is located about three finger widths from the crease in the wrist. It is good for nausea, morning sickness, anxiety, and headaches (Yahtzee!)

Like with the Aculief, which activates the LI4 point, there are products out there for the P6!

I am starting to feel as though acupressure is like when Smart Phone were the New Big Thing. “You want to ________? There’s an app for that!

Now, I have heard about Sea Bands. They are the original. They even have a cute pink pair for new moms (see ❄️ below)! I have heard many great things about them.

There is just one tiny problem…

I hate wristbands. Like, the sweatband style popular among skateboarders. I have really never been a fan. They feel bulky to me, they chafe my skin when wet (my skin can be temperamental), and they get hot. I also have scrawny wrists, so if they stretch out…well, that’s it.

Enter Psi Bands! While I found them on Amazon, they are available at major chain stores (Target, Walgreens, CVS, etc.). They come in several colors, and are a adjustable band like a watch. The button that activates the pressure point is also adjustable with a little dial.

Aside from my migraines causing nausea, I also can get a little motion-sick on long car trips. Not so far as nausea, per se, but I’m not exactly comfortable! I have some cross-country flights coming up in a few weeks, and the longest flight I’ve been on was three hours, so I have no idea if a six-plus-hour flight will make a difference.

Needless to say, I couldn’t resist.

I purchased them on Amazon in the color “Cherry Blossom.” Not too long ago, I got hit with a killer attack and had the opportunity to give them a go.

I put them on per the included instructions, which were incredibly simple to follow, and lied down. I didn’t get more than uncomfortably queasy until I took them off to take a bath. In hindsight, I probably should have left them on! They are waterproof, after all. I am a dumb bunny. 🙄


They are super cute and not quite as recognizable as Sea Bands. I like how thin and lightweight they are, and they are simple to put on. It does take a little bit of finagling to get the fit just so, but the dial helps a ton for the fine tuning.

Honestly, I am glad I got them. Like with all holistic treatments, it is not a miracle cure. It aides symptoms of nausea, but it is not going to make you have the ability to dance a jig on the rooftops. However, a little less misery goes a long way when it comes to migraine pain.

🐰🐰🐰🐰🐰/🐰🐰🐰🐰🐰 I was prepared to just do 4, but they gained a bunny with their design.

I highly recommend Psi Bands to anyone who suffers with nausea, for whatever reason that may be.

💖Hearts and Sparkles!💖
~Bunny~

❄️ Edit: I originally said the Sea Bands for Mom were lavender. My sister corrected me that they were baby pink. Whoops! She owns a pair because she wanted a more fun color than gray or black, and I really don’t blame her. Who cares if she isn’t a mom? Thanks, Juju!