Yay, part two of the Chronic Illness and Conventions series! Remember, this is not only relevant to conventions, and can be applied to any situation when you are not at home and among strangers. Theme parks, concerts, whatever!
Part two is all about Planning. Planning for the unexpected, having a plan for anything related to your chronic illness. Here are some examples:
- A person with diabetes will have insulin/glucose tabs/snacks on hand.
- Someone with a chronic pain illness (fibromyalgia, lupus…) will have a walker or cane if their pain can reach that point. Maybe they will have pain medications within easy access.
- Asthmatics keep a rescue inhaler nearby.
- Someone with extreme allergies will have an epi-pen on them.
Now, I know what you are thinking, Duh, Silly Rabbit! Of course they will have their supplies with them! I know that. The point of this post is not “don’t be irresponsible,” it’s “have a plan.”
The reason that I am having a full post in this series about having a plan and dealing with the unexpected is because it is seriously important. Now, in my experience with working with conventions in both hotels and convention center venues, there will always be resources available. Security teams from the event and the venue, as well as local police, and medical personnel is required by many (not all) venues during large events (like the popular dances at conventions). They are there to help you if you see something (like possible shoplifting or harassment), need something (like you locked your keys in your car or lost something), or in case of an emergency. These resources vary by event and by venue, so if you have any concerns, feel free to email the event staff in advance, and they can tell you which will be at their event.
Now, I cannot stress enough that while they are there to help you and keep everyone at the event safe, they have to keep everyone at the event safe. This could be thousands of people. They are not there to focus on any one individual. That could prove unsafe for the other patrons present. Now, don’t get me wrong, if there is an emergency, that emergent case is paramount and will be the main focus. However, if I have a migraine, I don’t expect them to bend over backwards and allow me to camp out wherever I please until I recover.
That is my responsibility.
This, of course, does not apply to anything that falls under the Americans with Disabilities Act (ADA). If you have any concerns about service animals, wheelchair accessible areas, etc, feel free to contact the event staff! They will be more than happy to comply! With this in mind, if you have some sort of necessary accommodations that fall under ADA guidelines, contact the event staff and ask about such specific accommodations in detail. The people who run conventions and other such events are not psychic and cannot predict every individual need for every possible disability that may or may not be present at their event. For example, if you suffer from Epilepsy or seizure disorders, you may want to ask about what lighting is used in the dances, and if they have a policy about strobes. As someone with Chronic Migraine, I struggle with strobe lights, but when I am managing the Main Events room at Omni, part of the schedule includes a rave-style dance. Typically, strobes are a staple. Since this is usually the last event of the night, I can get away with slipping away not long after it starts (a perk of having one of the co-owners of Omni be the DJ and Tech Chief!). I don’t expect him to not use strobes in my presence, or to make the music softer while I am there. I make myself scarce and go to bed.
❄️Note: Omni is a unique event. DJ Shadowfax hosts a signature event called The Blackout Rave where strobes are a common accent. Since he has many friends who have seizure disorders and since I have Chronic Migraine and photophobia, he starts the event with a “strobe-free” period. This is a special case, and should not be expected at every event! This is his choice!
Just remember that it is your responsibility to know what is in store at an event!
Now, back to the planning! You should be prepared in case of practically any circumstance.