EXCUSE ME?!

The context: A coworker thought it would be funny to play with a toy sword and *BONK* me on the head with it on Tuesday morning (playing around, not malicious. It wasn’t hard, but hard ENOUGH to trigger my head). Come Thursday, the spot still hurts something fierce, even worse than the initial hit. I see the company doctor. Yes, I reported the incident with the proper channels.

The doctor enters the room after I had finished my consultation with the RN beforehand, so he is aware of my situation. This is what happened:

Doctor: “So, I hear you have a headache.”

What I want to say: “No,Doc.I know headaches well.Intimately, in fact. I also know their cousin, Migraine, even better. This is not a headache. That’s like going to a doctor for kidney stones and having the doctor say, ‘So, I hear you have a stomachache.’”

What I really say: “I had a migraine, Sir, until it went away yesterday afternoon. Today, my skull hurts in the place where I was hit.”

I had to explain that a “headache was to your pulled quad as my pain was to your shin after running into the coffee table,” for my pain to be understood.

That’s how it always feels when a migraineur goes to a doctor who doesn’t specialize in headache disorders or migraine disease.

The Moral: Dont make flippant quips to people in pain/are sick. It invalidates their situation and is extremely condescending. And it isn’t funny.

💖Hearts and Sparkles!💖

~Bunny~

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Product Review: MigraineX

Hello, everyone! I know it has been a while since I have posted, but things have been a little crazy! Halloween season is upon us, so I am working like crazy, and I spent nearly a week in Arizona (with a side trip to California for DISNEYLAND!!) right after Labor Day.

What happened here in Florida where I live that same weekend? Hurricane-freaking-Irma. It hit my area Sunday night, when I was supposed to return home. So everything went squirrelly and we (my mom and I) came home Tuesday night. Luckily, I live far enough inland to not have been hit with the worst of it. We came home to power and minimal property damage (other buildings in my apartment complex more than my own). We got lucky! I count my blessings.

I did get to test a few things during the trip, though. Firstly: how will my body react to the weather conditions in the Southwest US (that will be it’s own post!), and secondly: I got to try out my MigraineX earplugs on the plane!

I bought these back when I got my Aculief clip, Psi-Bands, and gel eye-mask. The earplugs come with an app that I will review first.

migrainex2

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Migraine Buddy

If you are in need of a way to track your migraines to make it easier to talk to your doctor/specialist about your attacks, a quick google search will turn up many results. It can become overwhelming, but you will see one app show up over and over: Migraine Buddy. This app is available for Android and iOS, and it is amazing. I have been using it since it debuted for iOS (I was on a mailing list to know when it was released to the iTunes Store), and I love it. It is comprehensive, visually simple (and uses a color scheme that isn’t too painful for our photosensitive eyes), and makes it really simple to talk to your doctor.

It even tracks your location for barometric pressure readings, and has a graph to show the pressure forecast for your location! I love this function, since I am sensitive to such pressure changes.

pressure
By looking at this graph, I will have to be careful overnight tonight, as it doesn’t take much of a change (up or down) to trigger someone. It is not a guarantee, but it is nice to not be surprised. Especially in a Florida summer!

You can add or remove triggers, aura, medications, locations, and many more, as well as add any relevant notes you may need down to the minute, like when you took a specific medication.

I highly recommend this one for anyone with Chronic Migraine. I didn’t realize how much I needed a tracker until I started to use it.

Oh, the best part? It’s FREE!!!

Happy tracking!

💖Hearts and Sparkles!💖
~Bunny~

❄️While I am a user of this app and it’s resources, this post is strictly based on my personal opinions, as I am not affiliated with HealInt or Migraine Buddy.

An Letter for Children with Migraine

Recent studies are pointing towards Chronic Migraine being a genetically inherited disease over a random neurological condition. So, parents or potential parents who suffer from migraine, there is a good chance that one or more of your children will, too. My father has migraine, so did his mother. Other family members do, too. I have a twin who gets them occasionally, but I get them chronically. Genetics are a strange thing, eh? So, while I was laying in bed on my day off being lazy, it occurred to me that I need to focus some of my posts towards children. I was six when I got my first one. Six years old. That’s first grade. If it was not for the fact that my mom witnessed my dad’s migraines and had suffered them in the past herself, we would not have considered migraine as a possibility for my suffering.

Here we go:

Dear children with migraine,

I know it hurts. I have been where you are, and it feels like you’re dying. Everything hurts. Your eyes, ears, even your nose and teeth probably hurt. The TV is probably making your stomach feel sick. It takes every bit of energy to roll over, and you probably have to crawl to the bathroom. It’s okay.

If you get sick, it’s okay. It happens. No one will think less of you. As you get older, it may get easier, it may get harder. Don’t worry, though. You are strong. The migraines will make you stronger. Soon, you will able to tell when one is coming. You will know it is time to take some medicine. You can’t swallow pills yet? That’s okay! Many medicines come in liquid form, or you may be allowed to crush it up or open the capsules and mix it in something (Mom or Dad will know if you can). I recommend applesauce cups with some kind of fruit flavor (berry was my favorite when I was little, since it covered the taste of the medicine best). Take a bite, then wash it down with a swallow of milk (or your favorite milk-substitute). It may not taste good, but it will make you feel better. As you get older, you may learn to swallow pills.

Lay down in a dark room with something cold on your forehead and try to sleep. You will feel better in the morning. The migraine may last a few days, but it will feel better each day. Have your mom or dad keep a food journal, see if they can help you figure out what foods may give you migraines.

It will get easier. Just remember: You are not alone.

therethere

💖Hearts and Sparkles!💖
~Bunny~